Review Article | Ethics and Policy in Palliative Medicine and Palliative Care


The release of clinical information under the 21st century cures act and implications for patients with cancer: a narrative review

Cristiane Decat Bergerot, Joseph McCollom, Paulo Gustavo Bergerot, Ameish Govindarajan, Julia Maues, Mazie Tsang, Ryan Nipp

Abstract

The 21st Century Cures Act mandates patient access to electronic health record (EHR) information, including test results, and prohibits practices that interfere with that access. Many health systems operationalized this through patient portals, enhancing transparency and patient engagement. This narrative review synthesizes emerging literature on patients’ and clinicians’ experiences with portal-based access to oncology test results.

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